The Cayenne Wellness Center and Children's Foundation, alongside the Global Alliance of Sickle Cell Disease Organizations (GASCDO), is organizing a 24-hour global virtual marathon on June 19, 2025. This event, commemorating World Sickle Cell Day 2024, seeks to unite individuals worldwide in a celebration of resilience, talent, and the spirit of the sickle cell community. Through educational sessions, inspiring stories, and a showcase of global talents, the marathon aims to foster awareness, education, and support for those impacted by sickle cell disease and trait.
Dr. Carolyn Rowley, Executive Director of the Cayenne Wellness Center, emphasizes the event's role in highlighting the community's strength and the critical need for global awareness. The theme, 'Global Action, Local Impact: Empowering Communities for Effective Self-Advocacy,' underscores the importance of enhancing support systems at both local and international levels. The event will feature a variety of activities, including educational presentations, a talent showcase, and interactive sessions with healthcare leaders and community members.
Biba Tinga, Interim CEO of GASCDO, shares the excitement for the opportunity to spotlight the vibrant and passionate sickle cell community on a global stage. This marathon represents a significant step towards breaking down barriers and building a more inclusive and supportive world for individuals with sickle cell disease and trait. By bringing together voices from around the globe, the event aims to inspire action, promote health equity, and empower those affected by sickle cell conditions.
