Cystic fibrosis (CF) is a progressive genetic disease affecting approximately 40,000 individuals in the United States. Characterized by the body's inability to clear mucus, CF leads to severe lung infections, nutritional challenges, and lung disease, impacting all aspects of a patient's life. The disease, once considered fatal for children, now has a life expectancy of 56 years for those born today, thanks to advancements in treatment and care.
Recently, KC White, the Board Chair of the Cystic Fibrosis Foundation, participated in a nationwide satellite media tour to share her personal journey with CF and discuss the Foundation's ongoing efforts. Diagnosed at the age of 3, White has been an active volunteer and advocate for the Foundation since childhood, and she became the first person with CF to serve as its board chair in 2022.
White's leadership comes at a critical time. Approximately 90% of the CF population, including White, have seen significant health improvements due to recent treatments known as modulators. However, these advancements bring new challenges such as managing careers, finances, and family life. The Cystic Fibrosis Foundation is not only dedicated to funding research and developing new treatments but also to supporting the CF community in all aspects of their lives.
The Foundation's commitment is evident in its aggressive funding of research, drug development, and advocacy for high-quality, specialized care. It also fosters community connections and support programs, aiming to ensure that all individuals with CF can lead long and fulfilling lives.
For more information, visit CFF.ORG.
